Hello, friends! Sorry for the long pause in writing, but I got married in June and then went on a two-week honeymoon to Italy and I am just feeling caught up on sleep enough to sit down and write again. Some of you requested a post on my wedding and…
Hi, friends! If you’ve been following my blog closely, you may remember that I got engaged last spring. And you may have noticed that I haven’t been posting as often as I normally do. The reason? My life has gotten so chaotic because I am deep into wedding planning (my…
In my life with chronic illness, there are things I struggle with besides the physical symptoms. One of those things is speaking up for myself. The hardest part of all? Speaking up when I need help. Or admitting that I’m unable to do something because of my conditions, which then…
Pain is an unfortunate and often devastating symptom many must face when chronically ill. At its worst, pain can leave you on the sidelines instead of living your life to the fullest. Coming up with a plan to manage pain with chronic illness can be a frustrating task, especially when…
Hey there! You’ve probably landed on this page because you know someone with POTS and you need awesome gift ideas. Or, maybe you have POTS and you want to put some new items on your wish list for friends and family. Whatever the case may be, you’ve come to the…
Hello, friends! I’m very excited to share today’s post. For the past month, I’ve been training for running a 5k with POTS! This is huge for me because I haven’t run a 5k race—or any races at all—since before I got my POTS diagnosis. It took so much work and…
We’re sliding into October, which means I’m pulling out my favorite cardigans, dusting off my knee-high boots, and buying fall-scented (and flavored!) everything. But when you live with a chronic illness, it can also mean gearing up for a worsening of your symptoms. It’s a phenomenon in the chronic illness…
When I was in grad school a few years ago, my POTS brain fog was at its worst. Before I had POTS, I never dealt with brain fog, but once I started experiencing it, it was really distressing. Whereas I usually felt like a mentally sharp, well-spoken person, I suddenly…
I’ve said it before, but I’ll say it again: Heat is my number one enemy when it comes to Postural Orthostatic Tachycardia Syndrome. Even when I’m feeling good and not dealing with bad symptoms, all it takes is a little (or a lot, in the case of a few weeks…
Warmer weather and summer are here, bringing vacations, day trips, and other fun adventures with them. Mike and I are big fans of taking day trips on the weekends. It gives us a chance to explore somewhere new in New York City or within a reasonable traveling distance outside of…