In my life with chronic illness, there are things I struggle with besides the physical symptoms. One of those things is speaking up for myself. The hardest part of all? Speaking up when I need help. Or admitting that I’m unable to do something because of my conditions, which then…
Pain is an unfortunate and often devastating symptom many must face when chronically ill. At its worst, pain can leave you on the sidelines instead of living your life to the fullest. Coming up with a plan to manage pain with chronic illness can be a frustrating task, especially when…
We’re sliding into October, which means I’m pulling out my favorite cardigans, dusting off my knee-high boots, and buying fall-scented (and flavored!) everything. But when you live with a chronic illness, it can also mean gearing up for a worsening of your symptoms. It’s a phenomenon in the chronic illness…
When I was in grad school a few years ago, my POTS brain fog was at its worst. Before I had POTS, I never dealt with brain fog, but once I started experiencing it, it was really distressing. Whereas I usually felt like a mentally sharp, well-spoken person, I suddenly…
Today, I have something different that I’d like to talk about because it’s a part of my life with chronic illness and something I’ve been struggling with for years. I want to share my journey with endometriosis. I’ve put it off for a while because talking about this and sharing…
I’ve said it before, but I’ll say it again: Heat is my number one enemy when it comes to Postural Orthostatic Tachycardia Syndrome. Even when I’m feeling good and not dealing with bad symptoms, all it takes is a little (or a lot, in the case of a few weeks…
Nausea. In my opinion, it’s the worst. There are a lot of things I can deal with when it comes to my body. But feeling sick to my stomach and throwing up are two things that make me the most miserable. Having already had a few surgeries in my life,…
Warmer weather and summer are here, bringing vacations, day trips, and other fun adventures with them. Mike and I are big fans of taking day trips on the weekends. It gives us a chance to explore somewhere new in New York City or within a reasonable traveling distance outside of…
This week, I returned to New York City after a weeklong trip with my sister to Acadia National Park in Maine. And I can’t say enough how much of an amazing trip this was! My sister and I had always talked about going on a cross-country trip together, and while…
Hi, friends! What exciting and terrible news I have to share in today’s blog! I don’t typically post much about my personal life, but when major life news and things that affect my health happen, I open up to share with you all. As this blog’s title alludes to, I’ve…